pass me another cupcake

Helping a friend in need

Posted on October 4, 2013 by Steph

I’ve often thought of sharing a list of “what not to say to someone who has cancer.” However, I’ve seen many of these lists before and I know they can be somewhat harsh and make people feel like there is not a single thing they can do that is right when someone they care about is sick. So instead, I think it might be more productive to do a “how to help someone who has cancer” list.

1. PRESENTS

Anyone who has been following along since the beginning of the blog knows that I loooooved getting gifts while undergoing cancer treatment. Presents are awesome even when you’re feeling great, but they’re extra awesome when you’re feeling lousy. Sometimes the only thing that would make me smile on a terrible day was hearing the doorbell ring and seeing a box waiting for me. There was one day when I had multiple delivery trucks lined up in front of my house, and I felt extremely important. It didn’t even matter what the gift was, if it was something small or large, useful or just entertaining. It was the thought, and the unexpected surprise on an otherwise gloomy day.

Nothing sweeter than the sight and sound of that magical brown truck.

So if you know someone who is dealing with an illness, send them something. Show them you’re thinking of them. Oh, but don’t expect a thank you card, because they have cancer, and don’t have the energy to deal with rules of etiquette.

2. CALL/WRITE/TEXT/MAIL

I know some people feel like they don’t want to burden someone who has cancer and sometimes they think that leaving them alone is the best strategy. I can tell you that in most cases, this is not true. Sure, you might occasionally say the wrong thing, or you might write an email or leave a voicemail that never gets read or heard because the person is ill and exhausted and can’t keep track of anything. But I will tell you that silence or absence from a friend is a lot more hurtful than any dumb thing you could possibly say or do.

So send your friend a message to tell them they’re on your mind, and that they don’t need to respond. And don’t only reach out at the very beginning when you’re initially reacting to the shock of it all. Show that you’re still there, weeks, months later. Because that’s when it gets really hard. And really lonely. A cancer patient can never have too many friends.

3. SEND FOOD

There were many, many days where I simply did not have it in me to get groceries or make a half-decent meal. There were many days I couldn’t stand up for more than a minute, and standing is really helpful when grocery shopping or cooking. Apart from physical limitations, I also did not have the mental capacity to think about food and putting ingredients together.

Life for me and my husband was filled with stress 24/7 and there wasn’t a single second where we weren’t completely exhausted. People who sent us food were literally our life savers. We had some friends and family who would make complete meals that we could keep in the fridge and live off for an entire week. We had other friends send us gift cards for a food delivery service where we could order several flash-frozen meals and serve them up whenever we needed to. So if your friend is ill, send them food. Don’t ask what you can do. Don’t ask if they need anything. Don’t make them think. Just do it. Send food. And they will eat all of it. And they will love you forever.

This bib is kind of offensive, but also kind of awesome, no?

4. LET THEM BE A BIG, WHINY, CRYING BABY

When I was feeling like I wanted to die, it was very helpful to be around people who let me feel that way. People who would let me cry, let me scream, let me blubber this is so unfaaaaair, I hate my liiiiiiiiiife, I hate everyoneeee, waaaaaaah JUST KILL ME NOWWWWW! I had a lot of these moments, and they were not my finest, but that’s just the kind of mood I was in while I was sitting around, bald, trying not to puke, staring out the window. The last thing I wanted to be told was to cheer up or keep a positive attitude or any of that bullshit. The best thing you can say is “this really sucks and I hate that you’re going through this.” Nothing you can say or do can make anything better. The best thing you can do is let your friend scream and cry and feel all the feelings they need to until they finally pass out from exhaustion.

I know, it’s not really fun being friends with someone who has cancer, right? But having cancer is actually worse, so suck it up, be a pal, and sit with your friend while she drips snot all down her face and makes morbid comments about death and funerals. Yay friendship!

5. DON’T OVERSTAY YOUR WELCOME

This one is pretty simple, and you would think obvious. But for some people, it’s not, so I think it’s worth mentioning. When I was stuck at home for what felt like a million years, it was nice having friends and family visit. But it would take about ten minutes of socializing for me to feel like I needed a nap most days. I never want to tell anyone to leave, because it makes me feel like an ungrateful person. So don’t make me say it. Just leave!

The best friends are the ones who come (only after asking if it’s OK first), say hi, stay for a short visit, and then say “you should rest, I’m going to go now” without making me say it. Because truthfully, no one undergoing chemo is listening to more than 1/4 of anything you are saying to them. For me, I spent most of my social encounters thinking, How long until I can crawl back under my blanket and watch Marry Poppins while I cry without anyone seeing me?

Know your friend’s limits and respect them. Or, if you’re my brother and his girlfriend, you can just wait until I scream, GET THE HELL OUT OF MY HOUSE, which happened on more than one occasion. But we’re all still friends. I think.

A celebration

Posted on October 1, 2013 by Steph

When I was still doing chemo, some members of my family had mentioned it might be a nice idea to have a party when it was all over, to give me something to look forward to. I started researching some venues and thinking of who I might invite, but then I stopped. I felt sick and ugly and bald. I couldn’t imagine ever being healthy enough to attend a party. And I didn’t feel like celebrating. My future felt uncertain, a big question mark. Why celebrate when there might be more terrible news lurking around the corner? How would I really know when I was at the “end”?

So the party plans stopped and I told everyone I didn’t want to think about it for the time being and didn’t feel comfortable planning anything.

Then chemo ended, and radiation ended and I started to get better. And I had a scan that I was really scared about and felt some relief from the results. And then I decided, okay. Time to plan a party.

I knew this couldn’t really be a woohoo, I’m cured! themed party, because, well… I don’t know if I’m cured. And no one’s going to be saying those words to me any time soon. But I figured it didn’t really matter. Whether I’m cured or not, whether I live or die, right now I am feeling pretty good and I can stand up for multiple hours without fainting and I can climb several flights of stairs and I can lift a bag of groceries without needing a nap – and all of those things seemed worthy of celebrating. Just being healthy, for the moment, and alive, for the moment.

I also really wanted the chance to gather all the people who had been there for me this past year, in one room. It was my opportunity to say thank you to those people who had dropped meals at my door, sat with me while I moaned, mailed care packages to me, sent funny texts and emails to cheer me up, let me know they were always thinking of me.

We put together a huge candy bar. And we had cupcakes. And mini sandwiches with nutella and peanut butter. There was a music soundtrack provided by yours truly, and lots of laughs and hugs throughout the evening. I even made a quick impromptu speech at the coaxing of my grandfather.

It was so special to have all these people under one roof, and I admit, a bit overwhelming. I hadn’t seen some of these friends in a long time, and it’s very rare to have the opportunity to be surrounded by so many people who care about you, when there is not a wedding or any type of traditional milestone occasion involved. I had a friend fly in from New York to surprise me, and I also got to meet a very special lady for the first time after corresponding with her the whole time I was in treatment. It was an amazing night filled with amazing friends and family. And I am so lucky.

*All photographs taken by Lindsay Lauckner

The daily grind

Posted on September 24, 2013 by Steph

So I think this is the longest I have gone without blogging since this all started. And that is because there hasn’t been much to say… which is good. Uneventful is good. I have had enough excitement to last for a long time, and I’m okay with boring and mundane for a bit.

Last week was my first official full-time week at work. It’s strange, because I work in a new environment, where I’m fairly certain many people aren’t aware of my history. Sometimes I want to respond to emails: Hi, I had cancer, and you should know, considering the effects of my treatment on my brain function and how extremely tired I feel all the time, it’s pretty amazing that I am managing to respond to you and give you even a half-coherent answer to your question, so please say “thank you” and give me a cookie for being awesome. But I would probably seem insane, or get fired, so I haven’t followed through with my urges to be “that crazy girl” just yet.

Speaking of being the crazy person at work, this guy is my hero.

There have been some days recently where I have felt so fatigued that I am convinced something is wrong. I no longer really know the difference between regular tired and cancer tired, because I have been cancer tired for so long and have not functioned in normal day-to-day life for quite some time. I can’t remember if this tiredness is just something average, healthy people feel from lack of sleep, or a long day at work. I guess eventually I will have to start trusting my body again and not think that every slight malfunction is a sign of the Big Bad Cancer. But my body broke that trust in a pretty major way, and I think it will be a very long time until I can forgive it and move on. I’m holding a bit of a grudge, you might say.

Lately I think about cancer and recurrence a little less. I am too busy with so many other things. As I get further away from it, it seems more absurd to think about the cancer coming back. No way, that can’t happen. Look at me, I’m fine, I’m great, everything will be great. I feel these things more and more now.

But then just as quickly, I’m hit again with reality. Wait a second. There’s a total possibility that I’m not fine and that this possibility will be confirmed in the near future and that I’m really just a dead woman walking. Sometimes I feel like I’m fooling myself, like there’s no way this bit of normalcy is going to last. I go so far as to imagine my doctor giving me the news (again), yet this time, it would be paired with the whole cliche, “You have this many months/years to live” spiel. The fact that that could actually happen is really quite terrifying.

And then I snap out of it. Back to my life, where I have bills to pay, dinner to make, a job to do, people to see, places to go, and all that good stuff. Because you see, in a normal, boring life, there really isn’t much time to think of things like cancer and dying.

And that’s just fine by me.

My First Cancerversary

Posted on September 11, 2013September 11, 2013 by Steph

September 11th. A crummy date, for many reasons. One of them being that this is the date, one year ago, I was told:

You have breast cancer.

I remember my doctor telling me it would be a rough year, and I thought, A YEAR?! That is way too long! And yet now, here I am. One year, exactly. A year of hospitals, surgeries, poison, burning, anxiety, sickness, and survival.

I remember walking out into the street in a daze. I have cancer, I have cancer. I remember emailing my girlfriends: Ok, this is going to be a pretty intense email, but I have cancer. Fuckkkkk. I can’t believe I just typed that sentence. I remember stumbling over to the pharmacy to fill the prescription for anti-anxiety meds that my doctor said I would likely require to get to sleep for the next few nights. I thought, no way, I’ll be fine.

I popped my first pill that night.

I remember coming home and Googling my cancer (of course). I remember reading some really scary things about it and seeing the words AGGRESSIVE and POORER PROGNOSIS over and over. I emailed my doctor with the subject: First Freakout Email.

I remember my little sister coming over and how we sat on the couch and cried without talking. Then we, along with my husband, realized we still needed to eat, so we went grocery shopping. My first realization that life does not suddenly stop when you are in a crisis. It goes on, whether you like it or not.

We walked to the grocery store and I felt extreme rage at everyone I saw. I hated the young mom with her baby in a stroller. I hated the happy couples. I hated them all. Why were people going on, as if nothing had happened? Why were they allowed to be happy? My life had been destroyed. Why hadn’t theirs?

I don’t remember what I ate that night. Probably not very much, which was my trend for the month after my diagnosis.

I remember going to sleep, wondering how I would ever face the next day, and the days after that. Wondering how I’d ever get a grip on these foreign concepts – cancer, chemo, antibodies, hormones, fertility.

And here I am, one year later, with a far greater knowledge of these things and many more than I ever imagined I might possess.

I remember thinking, I am going to die. I might not make it through the year. I might never see the next season of Homeland.

As it turns out, I am very much alive. I made it through year one post-cancer. The first several years are the most critical. Every year is a milestone. Every year, I get closer to the possibility of more years.

This date will always be significant in my life. It is the day my life changed. The day I lost a large chunk of what innocence I still had. The day I became Steph AC (after-cancer) and said goodbye to Steph BC (before-cancer). The day I became a “cancer survivor” whether I wanted that title or not.

I will never forget that day.

I somehow made it through Year One. There were times I wasn’t sure I would. But I did. And I’m hopeful that Year Two will be a lot better, and involve a lot more fun, and a lot more hair.

Happy Cancerversary to me.

I am now a survivor

Posted on September 8, 2013February 6, 2014 by Steph

First off, a big HELLO to all my new readers. Last week I was “freshly pressed” on WordPress, meaning the WordPress editors featured one of my blog posts on their main page. I received thousands of page views as a result of the posting, and my phone has been going off non-stop since Thursday with everyone’s amazing comments and notifications of new followers of the blog. So thanks for stopping by! I haven’t had a second to respond to comments but I’ve read them all and loved each one. I also seem to have a lot of views in India… so hello, India!

If you’ve been following along, you should know that this weekend my family and I walked in the Weekend To End Women’s Cancers, benefiting the Princess Margaret Cancer Centre.

Yesterday was Day 1 of the walk and if you live in Toronto, you might recall that it poured rain the entire day. The. Entire. Day. My friends, walking in the rain with puddles in your shoes for 32KM is not fun. We were cold and wet. Very wet. But we powered through and somehow made it to the end. Because of my fatigue and various problems with my hips and knees, I thought I wouldn’t even make it half way, so I am fairly proud of myself that I managed to walk through a monsoon in my current condition. I also paused briefly during the lunch stop to do an interview with the Toronto Star. They published it today and if you don’t subscribe to The Star, you can see it here.

Today was Day 2, and the weather was much more suited to long-distance walking. Unfortunately, my body was a bit damaged from the previous day. I can’t walk straight without searing pain in my knees and thighs, so I had to do a very unattractive limp/hobble for the rest of the route. The pain in my legs is actually very similar to the pain I felt when I was doing chemo, and reminds me that it was only several months ago that I couldn’t even walk down the street without being in pain. I have come a long way, you might say.

Chillin with some Smart Food. I will never pass up an opportunity for free food, and this weekend, there were many.

At the end of the walk, we marched down the finish line, into the Skydome (or the Rogers Centre, if you go by the new name… which, I don’t) and saw our faces up on the jumbotron. It is quite alarming to see your face that large, but since it isn’t something you experience every day, I loved it, and milked it for all it was worth – waving at the cameras, and doing some sort of awkward limp-jig down the aisle.

As the last walkers came marching in, it was time for my speech at the closing ceremonies. Right before it started, I had that feeling of why did I agree to do this, I just want to lie down and fall asleep and never get up. I was also getting paranoid about my nose dripping all down my face, since my drugs seem to have the nice effect of giving me a nasal perma-drip. Luckily, I believe my sniffles were mistaken for tears, so that worked out just fine.

The speech went well, and it was quite a surreal experience, standing up on a stage, in the middle of the baseball field, speaking to a huge crowd of cancer survivors and their supporters – especially in contrast to last year, where I had been a mere onlooker, anxiously awaiting the results of my biopsy.

I managed to keep myself composed until near the end, where I said the words “I am now a survivor.” I had practiced the speech a dozen times before, and never got choked up, and assumed I wouldn’t when I did it in front of others. But I guess it took saying it in that setting for it to really hit me. Those words. I am a cancer survivor. I could see the tears of everyone else looking back at me, and apparently crying is contagious, because I dissolved into a puddle at that moment. Everyone cheered for me and the spotlight was shining in my eyes and the entire thing felt like I was in some sort of dream, or playing a part in a movie. It was an amazing experience, and I’m glad I was able to do it, and hopefully did justice to the other women fighting it out with the big ugly C.

Afterward, I had many women coming up to me and hugging me with tears in their eyes, sharing their stories, and congratulating me on a job well done. Three young girls came over to me and they each hugged me, and told me I was their inspiration and hero, and because of me, they are going to do the walk next year. They had tears in their eyes and seemed genuinely moved. I turned to my sister, and we both, again, burst into tears, in reaction to the sweet sentiment of these girls. It was such a great compliment, to know I had affected them in some small way. I continue to be amazed by the power my words can have upon perfect strangers, and the power that theirs can have right back on me. Amidst all of the crap that I have endured, I feel so lucky for all of the people who have come into my life, however brief, as a result of me having had cancer.

And now I am home, back on the good ol’ couch, full of aches and pains and unable to stand without feeling like my legs are breaking beneath me. But I don’t mind. Because it’s pain from walking. From raising thousands of dollars for cancer research. From using my body. Not pain from cancer. Not pain from cancer drugs. I could get used to this kind of pain. Bring it on.

Are you there God, it’s me, Stephanie

Posted on September 3, 2013September 14, 2015 by Steph

Tomorrow evening marks the beginning of the Jewish New Year, also known as Rosh Hashanah. For those of you not in the know, this is one of the holiest and most significant days for us Jewish folk. It’s like our Christmas. Except not at all.

Unlike the North American type of New Year, the Jewish one is a touch more serious, with some heavy lessons thrown in for good measure (the Jews love lessons). The idea is that the Big Guy up there opens up his big book of judgment on Rosh Hashanah, and decides whether you’ve been naughty or nice and if you deserve to be written into his Book of Life. If you’re an evil, awful person, then your chances don’t look so good. If you’re a saint, then you likely have a good year ahead. If you’ve made a few mistakes, but are otherwise pretty alright, then you need to spend the next 10 days repenting for your sins and asking for forgiveness and making things right with the Big Guy, before he seals your fate for the year on Yom Kippur.

Okay, so I think that’s a really simplified version and if any religious Jews are reading this, I apologize, but that’s the best I can do right now. Judaism for Dummies.

Challah, i.e. the best part of any Jewish holiday. (photo by Tori Avey)

Last year, we celebrated the holiday the week I was diagnosed with breast cancer, so one might say that there was a bit of a cloud hanging over the holidays. Actually, there was a cloud hanging over pretty much every holiday for the entire past year, and some holidays I even had to bypass completely. So I am looking forward to any holiday where I can sit up, eat some food, enjoy friends and family, and not pass out in the middle of it all.

I don’t think I was really deserving of the past year, and if there is a God up there, I’m pretty sure he got it wrong when he decided what my fate would be for the following year. Unless I did some really, incredibly terrible thing that I have blocked from my memory, but I’m fairly certain that I’m mostly a decent person.

So hey God, if you’re listening, you kind of owe me one. I’ll look past your error this time, since we all make mistakes, and maybe you were just having an off day. It happens. But there is no need to waste time judging me this year. I’ve paid my dues. Please just throw my name straight into your Book of Life. Top of the list. Let’s try to make this year a little better, a little brighter, and a lot less cancer-filled. Thank you.

Shanah Tovah.

Flashbacks and feelings

Posted on August 27, 2013 by Steph

Yawn. I am tired. That could be the theme of the past year, really: I am tired. It turns out that getting back into the swing of things is exhausting. People had warned me it might be. My oncologist said, take it slow. But I was all, whatever, I feel great, I have more energy than all of these fools, yahoo! I may have overestimated myself a tad, while underestimating the cumulative effects of the crazy-ass things that have happened to me in a very short span of time. Oops. My mistake.

I am still working part-time, slowly increasing my days and hours each week. Working is strange. I think it would be strange for anyone, after an extended absence, especially because my role at work has changed, so it’s an even larger adjustment. But my absence was so intense and surreal, that I believe it might feel extra strange for me. It is like I was asleep for a year, stuck in some crazy nightmare, and then I woke up and immediately returned to my old life. Yet it is hard to remember that old life, or feel like it is truly mine. I don’t feel part of that world anymore, not yet at least. I feel more at home in the hospital than I do almost anywhere else. More familiarity with my doctors and nurses than with old colleagues.

I feel very much like an impostor.

Yesterday I saw my surgeon, the wonderful man who removed my butt-ugly tumor. He said to me, I bet you’re getting pretty close to forgetting all about us. But I don’t think I am. I don’t think I will ever forget. Maybe think about it all a bit less, sure. But forgetting – doubtful.

Sometimes I find myself having flashbacks, like a soldier with PTSD. I’ll remember how it felt to lose my hair. How I couldn’t move my arms after my surgery. How my ears rang and my heart sped and my bones throbbed while I lay under my blanket, wondering if death was on its way. Sometimes there are triggers. The smell of the bubbles for my bath now reminds me of pain, when I was forced to take baths to ease my sore muscles and joints. A piece of ice floating in my cup makes me gag, reminding me of the terrible feeling that would wash over me as the chemo dripped into my veins, while I sucked on ice chips to prevent mouth sores.

Just a couple days ago, I was hit with a vivid flashback of the day I was diagnosed, sitting in my doctor’s office, hearing “cancer” for the first time. You’d think I’d be used to it by now, but it still upsets me, still shocks me right down to my core. I had cancer? What? Who? Me? No way. Not possible. My breasts were removed? My hair fell out? WHAT?! Did that seriously all happen to me? There must have been some kind of mistake.

Imagine? Oops, sorry young lady, the cancer thing was all a big mix-up. Never happened. Snap your fingers and you can go back in time and forget the whole mess.

Ha. Ok. Clearly I need a nap.

Steph’s Cancer Tips – Part II

Posted on August 23, 2013 by Steph

Time for some more tips! To read the first installment, click here.

Entertaining Yourself

If your cancer treatment drags on for awhile, as mine did, you will find you have a considerable amount of downtime. You will likely think to yourself, “Great, this will be the perfect time to read those huge novels I haven’t had time for and finally watch the entire box set of The Wire.” WRONG! So very wrong. Here’s the thing: your “downtime” during cancer treatment is not fun. It’s not relaxing. In my case, most of the time I felt like absolute crap. There is no way I could have focused on a book. Even reading a tabloid was challenging for me at times. And stimulating television or cinema? Don’t even think about it. When you are in pain and can barely lift your head up, you don’t want to watch anything thought-provoking, intelligent, or heavy. There is a reason that I watched two entire seasons of The Real Housewives franchise while I was doing chemo — the show is complete garbage and requires a very low level of mental acuity to follow.

There were many films I thought I would watch while I was sick. Classics, documentaries, award-winners. WRONG AGAIN! I found the only DVD’s I wanted to watch were those I had seen a thousand times and provided comfort. Back to the Future, Edward Scissorhands, Big, Pretty Woman, Hook, every Disney movie ever. It didn’t matter if I passed out in the middle of the movie or just closed my eyes while I listened to the buzz of the TV. I didn’t need to focus and pay attention to what was going on. The purpose of TV and movies was 100% distraction. A way to pass the hours, in hopes that the days would go a little bit faster. A small respite from reality.

So in conclusion: Honey Boo Boo = Good. Six Feet Under = Bad (although it is my favourite show of all time, but it’s about the last thing I’d recommend you watch while doing chemotherapy). Dumb and Dumber = Good. Memento = Bad. Got it? Good.

Dealing with stupidity

If you have cancer, chances are, people are going to say some pretty dumb things to you.

People will ask you details about your prognosis, or say thing like “You’re going to be fine, right?” They will compare you to their 95 year-old great grandmother who had a small non-invasive cancer that was 100% different from the cancer you have. They will tell you stories of someone they knew who had cancer, that end with the person dying. They will make awkward comments about boob jobs, insinuating that a regular boob job is in any way similar to having your cancerous breast surgically removed. They will try to show you they know “exactly how you feel” by comparing your cancer to a very temporary, highly non-threatening malady they suffered from 5 years ago. They will say, “I know you are going to survive this” even though you are painfully aware that you might not survive this and that it has nothing to do with your positive attitude, or lack thereof.

I’m betting this lady has said some dumb things in her time.

Yes, people say some dumb things. This is because most people have no idea what to say or what to ask when someone has cancer. There is no guidebook. It’s understandable that people will say the wrong thing and mess up from time to time, as I’m sure I have many times in the past, pre-cancer. You have to give people a break. 99% of them have good intentions and have no idea that what they’ve said might be hurtful/anxiety-provoking/insensitive/ignorant.

Of course, if someone says something extremely stupid or blatantly offensive, you can always kick them, or take the high road and explain to them why what they’ve said has upset you. But all of that will get exhausting, fast. I just choose to smile and nod. That is usually the answer to dealing with most things: Smile and nod.

Using the Internet as a resource

Ooooh this is a tricky one. I love the internet. I love having information at my fingertips. But as anyone who has ever Googled a health issue knows, the world wide web can be a very dangerous place. So here is my advice to you: TREAD LIGHTLY. Seriously.

There are some great things you can get from the internet if you have been diagnosed with cancer. Friendly people on message boards sharing the tricks of the trade for dealing with treatment side effects. Reputable websites that can allow you to better understand your disease and your treatment options. (Note: there are also lots of bogus, scammy sites out there, so you will need a basic level of media literacy to navigate online resources. Your hospital should also be able to provide you with a long list of reputable websites.)

However, you need to be careful with how you use this information and how far down the rabbit hole you wish to go. Just a few evenings ago, I was reading some article, that led me to search for more information, and eventually I ended up stumbling on some studies that provided some very upsetting stats on survival rates for young women with breast cancer. As I read more and more, I became more anxious and riddled with fear. I burst into tears and sobbed to my husband, “I’m… gonna… dieeeeee… it’s… not… faaaaaairrrr waaaaah bleerghhhh.” Something along those lines. And I had been feeling fine just moments earlier. But a simple click of the mouse here, and another one there, and I had stumbled upon some really depressing information, that was not helpful to me in the least.

You’re going to find some info on the internet that you don’t like. I mean, hi, you have cancer. People die from cancer, and there are many things on the internet that wish to remind you of this fact, at every twist and turn you take. You must learn to shut out the noise. Remember that what you’re reading is some study of some group of people, and you are an individual. If the stats say that 99 out of 100 people died, that still means one lived, right? And that one person could be you, right? Definitely. At least, that’s what I tell myself. I also try to remember that even the best studies have their faults, and even the most thorough researchers cannot be 100% accurate all the time.

I could spend hours reading expert opinions and numbers that tell me the likelihood that I will or won’t be around five years from now. And sometimes I do, because I can’t help it. It’s like stumbling upon a horrific car accident and not being able to turn away. But you know what? You really should turn away. Keep on driving. Keep on moving. Because, for today, you are alive. You are not a statistic. And you really should be making better use of your time spent on the internet, like watching dumb clips on YouTube.

Scattered thoughts

Posted on August 15, 2013August 15, 2013 by Steph

Some thoughts from my very tired mind:

Today I saw multiple incidents where strangers were yelling at each other and saying nasty things in the street. A streetcar rider mad at an automobile driver. A biker mad at a pedestrian. Everyone just mad at the world, at everyone, and everything. And you know what? These days, mad people are what make me… well, mad. Sometimes I wish I could just touch someone and they’d get a quick glimpse into the hell that has been much of the past year for me and my husband. And then maybe they would think, oh geez, this really isn’t worth getting that angry over. If you have your health, and you have at least one person in your life who wants to be around you at least some of the time, then as far as I’m concerned, you have it pretty good. Can we all just stop hating each other and hating the world for one second? Seriously. Stop. Life is good.

Yesterday I participated in a video that will be shown during the first night of the Weekend to End Women’s Cancers walk. After we were finished, I was asked if I would be the speaker at the closing ceremonies of the Walk at the Rogers Centre, and represent all the survivors. I was really honoured and said yes, and asked if instead of reading from a script, I could write it myself. I don’t really think reading someone else’s words will sound anything like me, or necessarily be what I would want to say. So now I’ll have to think of what I want to say. I am not worried about writing it. I love writing speeches. The thing I was most excited for about having a wedding was getting to write a speech (besides the whole getting married thing, I liked that too). So I should be okay in that area. I am mostly worried about being a huge sweaty mess and having my eyebrows melt off my face. Or going completely blank and just saying, “Breast cancer sucks!!!” and having everyone throw tomatoes at my head.

I’m thinking of writing a book. Just thinking about it. I have a lot of people really pushing me to do it. So I guess I’m in the early planning stages. In other words, I have written nothing. Well, besides this entire blog, which I guess is something. But there is so much more to say, and such a longer story to tell. I just don’t think I have the emotional stamina to deal with it right now, since I’m trying hard to NOT think about cancer as much as I can. So I might leave it alone for a bit, and tackle it when I’m ready. I’ve already imagined it being turned into a screenplay, and I’ve thought about what I would say in my Oscar acceptance speech. I realize this is jumping ahead a bit and I should probably attempt to write a sentence or two before buying a fancy gown. But go big or go home, right? Right.

I went back to work this week on a part-time schedule. It was a bit overwhelming as I had to try to absorb a lot of new information in a short amount of time. But I think I’ll get the hang of it again after a bit more time. I refuse to allow myself to get stressed, or to let anyone else’s stress rub off on me. I can’t really afford to be stressed. And I kind of have this new life perspective now, where it isn’t too difficult for me to separate what is truly worth getting in a panic over vs. what is not. Pretty much almost everything falls into the latter category.

I’ve been buying some clothes lately, because it felt necessary after wearing pretty much nothing but pajamas and sweatpants for a year. I remember after I was first diagnosed, I couldn’t bring myself to shop and didn’t want to buy any clothing. It felt pointless, like maybe I wouldn’t live long enough to wear the clothes or maybe I’d never have a need for regular clothes again, or never like the way I looked in anything. I didn’t want to be dead, with a bunch of new clothes, and have to leave my family to deal with getting rid of all them. Clearly, my mind was in a pretty dark state. But it ain’t there anymore. I love clothes. I want more. MORE MORE MORE.

Today I went to a check-up at the hospital, where three different people looked at and squished my boobs. While I was sitting in the waiting room, I saw so many scared women, clearly only at the beginning of their “journey”. You can usually tell by who has long hair. I remember being that scared girl those first few months, sitting in the waiting room, wanting to cry in the corner and be pretty much anywhere else. And I’d look at other ladies with short hair, who clearly had just finished their treatment, and I was in awe of them, wondering if I’d ever make it to that point. And as I sat there today, with my almost-pixie hair, feeling confident and healthy, I realized I was at that point. I am now the girl that others are staring at, wondering if they’ll make it over to the other side. Wondering how I survived. Truthfully, I don’t know how I did. But somehow I made it. I am part of the short-hair club. I am someone others look to for hope and inspiration. If they only knew that I laugh when people fall down, or when someone farts, then maybe they wouldn’t feel so inspired. But that can be our secret.

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