September 11th, here we are again. A date that is impossible to overlook on our calendars. That date became etched in our brains back in 2001, and became extra awful (as if it needed to become so) for me in 2012, when I was diagnosed with breast cancer a month after my 28th birthday.
So here we are again, another cancerversary, another trip around the sun. This one is a biggie, too: five years. When cancer stats talk about rates of long-term survival, they typically are talking about people who live beyond five years. It’s thought that after that point, your risk of biting the big one continues to drop and you can rest a little easier. Obviously there are all sorts of problems with measuring survival like this, as breast cancer can and does recur many years down the road. So it’s not really a clear indicator of triumph. But it’s the closest thing we’ve got, so for now, I’ll take it. Five years, I’m still here. Has a nice ring to it.
I wish I could say I’ve put it all behind me and never think about the big C anymore, but that would be a lie, and no one likes a liar.
I still have the occasional scare, one of which occurred early in my pregnancy that completely derailed me. The stakes have become infinitely higher now that I have my little baby to think about. Before there were all sorts of things that sucked about the possibility of death. Big time. But now that I’m a mom, I can’t even allow my brain to go there. It’s too much. So when something scary pops up, and my mind is forced to go there… it ain’t pretty. And I hate that I still have to live with these terrifying possibilities. I know so many young women who have died of breast cancer, I’ve lost count. Many of them gone in the past year. What makes me luckier than them? Why should my ending be any different? These questions burn inside of me, no matter how hard I might try to put out the fire. But fortunately, I have the most amazing little distraction to keep me occupied and prevent me from obsessing over my worst fears all day long.
And speaking of that distraction, he pretty much takes up all of my minutes and hours of the day, as babies tend to do. So I don’t have much time to flesh out deep thoughts about what this day means to me. I’m too busy feeding and changing diapers and participating in tickle fights and fits of laughter. And really, when it comes down to it, that’s what this day means. It means everything. Because I have him.
When thinking of what to title this blog post, a post I’ve been imagining writing for a long time, the voice of Jeff Goldblum immediately popped in my head. In Jurassic Park, one of my childhood faves, his character utters the now famous line, “Life, uh, finds a way.” Although referring to dinosaurs and their ability to breed in that particular case, the line came to mind when thinking about my own little (far less destructive) miracle that has found its way into existence, despite the odds.
That’s right folks, the rumours are indeed true: I am pregnant. With a baby (not a dinosaur, in case there’s any confusion there). And not just a baby, but a baby boy. A real, live baby boy. Ain’t that somethin’?
For a quick recap: you may recall that I was taking cancer-fighting drugs that prevented me from having a child. You may also recall that I had a type of chemotherapy that put me at risk for damaging my ovarian reserve. You may not recall any of this, because it’s in your rearview mirror and you are likely thinking about other things, as you should be. But I have not thought about other things. Ok, that’s not entirely true. Occasionally I think about pizza, or last night’s Bachelor episode. But a lot of my brain power has gone to thinking about babies. Wondering if that possibility was lost for me. Wondering if I should take the risk. Researching, reading, discussing, deciding, trying to sort through it all the best that I could.
My decision to attempt pregnancy was not made lightly. It was agonizing. At times, it still is. My anxiety has been sky-high, as I wrestle with nerves around the pregnancy itself after encountering a bumpy start which made me hesitant to share my news. My excitement has been tempered with familiar fears creeping their way back in, fears about my own health and how my survival now feels even more critical. I feel like the last time I got really excited about life, I was hit with a bomb, and I worry (irrationally, but still) that I might somehow jinx this good fortune if I put it out into the world.
But after waiting patiently on the sidelines for the last several years, watching baby announcements flood my social media feeds, celebrating the births of my friends’ and family’s children, I want to enjoy this moment in time, this moment I’ve waited so long for. I want to share it. I want you to know that miracles can happen. I want you to know that good things can happen. But mostly I want myself to know that good things can happen. It is possible. It has to be. It’s happening right now, as I feel my son swimming around inside of me.
Hi! I am still alive! In case you were worried I might not be. But the adage no news is good news tends to apply with me.
I know people want me to write frequently (quite literally, I have had people shout at me YOU HAVE TO KEEP WRITING), which is very flattering, but I have been busy busy busy with work and life and all that jazz. I do intend to keep writing, in some form or another, I just need to carve out some time to do it. A couple nights ago when I was in the midst of one of my insomnia spells, I lay awake thinking up ideas for books, which I’m taking as a sign that maybe a brilliant idea is about to be bestowed upon me. But for now I just haven’t had the space in my brain to do much of anything. I’m taking a bit of a break after finishing my column with ELLE but never fear, I’ll get back at it again. Just need time for some creative inspiration to hit me on the head.
I just came across this post and was like, oh cool, it’s a list about me, “the cancer woman”. Then I realized it’s about women who are born under the cancer zodiac sign, which initially didn’t even cross my mind. I see the world through cancer-coloured lenses it seems. (Side note: sometimes my husband and I refer to myself as ‘Cancer Girl’ or ‘Cancer Wife’… which I guess is a bit dark, but it makes us giggle.)
And in other cancer news, tomorrow (well pretty much today, because I am up late writing this) is my third cancerversary! If you know me, you know that I love using cancer as a way to celebrate and I end up making up lots of holidays that don’t really exist BECAUSE I HAD CANCER SO I CAN DO WHAT I WANT. My cancerversary is one of my favourite of said holidays. Even though it’s a reminder of the worst goddamn day of my life, I’ve chosen to turn it on its head and make it into a day to celebrate that I’m still alive. Because being alive is so wonderful and we could probably all use some more reminders of this simple fact.
Tomorrow morning I’m headed to the Big Apple on, yep, September 11th. And I can’t think of anywhere more fitting to be for cancerversary #3. September 11th. A day to reflect on the pain of the past, and feel optimistic about the future, and celebrate the fact that we’re still here. I’m still here!
I’ve been thinking a lot lately of the lessons I’ve learned and wisdom gained as a result of having had a life-threatening disease at a young age. I received a lot of positive feedback from my recent column for ELLE where I wrote about the effect my cancer had on my career, and how it made me unable to work in any type of environment where I didn’t feel happy and fulfilled. Some people seem to think leaving my job was revolutionary, but to me, it was just a natural consequence of my post-cancer no-bullshit attitude.
But I’ve realized that not everyone has gone through a terrifying health scare (you lucky dogs, you!) and that what now seems obvious to me might not be so obvious to the average Joe or Jane. So being the generous soul that I am, I’m going to share some of my bits of wisdom with you that I’ve picked up along the way.
Spend your money
I have always been really good with money. I’ve saved since I was a wee child, always cautious with my spending. While most Jewish kids take their bar/bat mitzvah money and immediately spend it on something awesome, mine went straight into the bank. I wanted to keep building my savings, for my future house/kids/retirement/life.
And then cancer came onto the scene, I thought I was at death’s door, and I stopped planning and caring so much about the future, because I wasn’t sure it was going to come. It seemed silly to spend time calculating how much I needed to retire if I were going to be dead long before then anyway.
As time goes on, my senses have somewhat returned and I realize there is a chance I could live until retirement and it’s still a good idea to plan for the future (luckily I have my very intelligent, finance-minded husband who locks up money in secret places I can’t find it so that I will not find myself on the streets come age 65). But even though I’m still saving and planning, I’m also not stressing about it anymore. If throwing a bit of money at a problem makes my life easier, whether it’s taking a cab home because it’s freezing out, or ordering takeout because I’m too lazy to cook, I’ll do it, without giving it a thought. Obviously I’m not walking around every day sipping Dom Pérignon and eating caviar (although there’s a fun image for you), but I’m caring a lot less and enjoying a lot more. Which leads me to my next point…
Go on vacation
This involves spending money too, and potentially a fair amount of it if you go somewhere super awesome, so I feel like I should put in some sort of disclaimer that you’re not allowed to come back and yell at me after you’ve gone broke from following all my rules. Okay, glad we got that out of the way.
I was diagnosed with cancer a couple months before my husband and I were booked to go to Jamaica for a holiday. Cancelling that trip was such a bummer. Rebooking that trip and finally getting there after I finished chemo and radiation was pure bliss. And then we decided that that wasn’t enough, and went back again 6 months later.
We’ve travelled a bunch since cancer, little trips here and there, some bigger. After going through something like cancer where you’re not allowed to travel, and where you dream about someday getting on a plane and being anywhere but your couch or bathroom, you never take going on vacation for granted again. Although we still have all the same old work and financial constraints we always had, we’re now much more likely to just say “screw it” and book a ticket and go somewhere.
Enjoy your food
Okay, if you know me, you know this was never an issue for me pre-cancer. But if anything, I enjoy eating even more now than I did before. It is such an amazing pleasure that so many of us don’t take the time to appreciate. But let me tell you, losing your sense of taste and losing your ability to eat the foods you like because of the many gross side effects from cancer treatment, really makes you realize how amazing eating is.
I try my best to eat healthy and balanced, but I also love my sweets, and my carbs… and bacon. And I don’t apologize for any of it. Because you know what? Life is short, and if I get hit by a bus tomorrow, or die from cancer, or anything else, at least I’ll die knowing that I didn’t deprive myself of one of my greatest joys in life. Food is good. Make good choices, but don’t stress about it so much. Order the side of fries, or have the slice of cake. JUST EAT.
Don’t waste time doing something you hate
I referenced this earlier and have written about it already, but it’s amazing how many people fall into the trap of being comfortable in a situation that makes them unhappy – a job, a relationship, a mindset. Whatever it is, if it’s making you miserable, get the hell out. Seriously. Time is so bloody precious and you don’t want to waste a second of it.
Choose happiness. Choose you. Once you make that choice, good things will start to happen. (But if this leads to you quitting your job and not being able to pay your rent, please don’t show up at my house, seriously my husband will kill me.)
Have you ever noticed how much people are stressed out on a daily basis? Take a look around you. It sometimes seems like everyone is stressed, anxious, uptight. If this is you, stop it. Stop it right now. Sure there is “productive” stress. A little bit here and there can do some good and help get things done. But for the most part, all it does is yucky things to your body and mind.
Even though I still find myself getting worked up in stressful situations, I’m much better now at not letting anyone else’s bullshit get to me. I just don’t have the time or patience for it. If I do notice my stress levels start to rise, I think to myself, Is this really that important? Is this life or death? And the answer is almost always no. And then I snap out of it, eat a cookie, and move on.
Don’t take your health for granted
Yep, this is the big one. I don’t think it’s possible to go through something like cancer without having a newfound appreciation for how amazing your body is when it’s working properly. Since having cancer, every day that I’m able to lift my arms, have control of my bowels, have hair growing from my scalp, can hold food down, can sit upright, can move without excruciating pain, can walk down the stairs without passing out IS A FREAKING AMAZING DAY. It’s like the wise John Mayer once said – your body is a wonderland. If yours is functioning properly without trying to kill you, then you’re extremely lucky.
Really, what it all boils down to, is we’ve all only got one life to live. So live it, and live it well. And most importantly, remember these six words to guide you through: There is always room for dessert.
Friday morning I woke up and noticed my eye felt a bit weird and wouldn’t open as wide as it usually does. I looked in the mirror and saw that my left eyelid was drooping and my pupil seemed smaller.
I assumed it was a reaction to sleeping terribly all week (or for the past 2 years, really), but then upon discussing with my sister, who had spoken to a physician where she’s working, I started to get concerned it might be something more serious.
I learned that drooping eye + constricted pupil are symptoms of something called Horner’s Syndrome. Add this to the ongoing list of Things I now know way too much about that I never cared about knowing. It’s caused by nerve damage, which can be the result of many things, including a tumour in the lung or brain.
Sound the alarm bells. Ugh.
I really didn’t feel like dealing with more bizarre medical stuff, so I went to work as usual. I contacted my oncologist to see if he thought it was of any concern. He’s usually fairly relaxed about this kind of stuff and takes more of a wait-and-see approach, so I assumed that is what he would say. A couple hours later, while I was eating lunch with my sister, I received an email from a nurse informing me my doctor says I should go to the ER.
So I decided what the hell, I’ll spend a couple hours in emerg, they’ll tell me there’s nothing they can do, and I’ll be home before the end of the day. I packed up my stuff and my sister and I walked over to the hospital.
And this was the beginning of what I will now fondly refer to as 24 Hours In Hell.
I made it through the triage system fairly swiftly and was seen within an hour, which is very speedy in emergency room land.
My first interaction was with a nurse practitioner.
“Hey, I remember you,” I said, recalling having been seen by this same nurse the last time I was in the ER.
“Well yah, I work here,” she shot back, sarcastically.
As you may be able to surmise, this gal’s bedside manner was pretty much non-existent.
She did some neuro tests on me, following my eyes around and making sure I hadn’t had a stroke and all that jazz. She was cold and had no empathy throughout her questions and examination. She then said she’d have to order a brain CT to rule out anything serious. We asked about doing the lung imaging, due to the relation to Horner’s Syndrome, and she said she had never heard of that and would have to look it up. This did not bring me comfort.
I told her I’d prefer not to have a CT as I try to minimize all radiation to my body unless absolutely necessary. She said there would be no way to get an MRI because it takes forever to get one. She went off to talk to the staff doctor and said she’d come find us in a bit. I asked if I was allowed to see a doctor and speak to one myself.
“Ummm yeaaah, I guess. I’ll see what she says.”
THANKS, MEAN NURSE LADY!
She disappeared, and my sister and I were stuck waiting in a couple chairs right in front of the nursing station, as there were no beds or properly designated areas to wait. I sat and watched while a man a few feet away from me was screaming in pain while a doctor performed some kind of procedure, not bothering to draw the curtains. He stared at me the whole time crying in pain. I tried to stare at the floor but it was hard to look away.
All over, people were screaming, whining, coughing. Some from prison, many from the streets, a whole hodgepodge of people in agony smushed into a tiny corner of the hospital.
We found Mean Nurse and asked her what was going on.
“You’re going to do a chest xray, blood work, and a brain CT. We’ll need to see if there’s any kind of metastasis from your cancer and then we’ll refer you to the appropriate clinic after.”
This woman was literally casually talking about the possibility of my cancer having migrated to my brain, in the middle of the squishy, crammed hallway, with zero privacy. She may as well have said, “I’m going out to get some groceries” for how little she seemed to care about what she was saying.
We pushed again for the MRI, and she said she’d check, looking as though she were doing us a huge favour. We sat around and waited some more. She came back and said she managed to get me an MRI slot and it could take a few hours, and in the meantime, I’d be seen by a neurologist.
Ok, so I guess we’re staying here for dinner, I thought. Oh, how naive I was back in those first few hours.
We asked Mean Nurse if there was at least anywhere else we could sit and wait where we didn’t have to watch patients bleeding from their head lying a couple feet from us.
“Nope,” she said, “this is how it is. We’re all stuck in this emergency room shit-hole together.”
THANKS FOR YOUR HELP, YOU HAVE BEEN SO KIND AND PATIENT AS I SIT HERE WAITING TO FIND OUT IF I’M DYING.
Mean Nurse disappeared once more, and we never saw her again. I didn’t know who I should talk to, where I should go, or what I was supposed to be doing. I eventually found my way over to the chest xray, which took two minutes, and then wandered around asking people where I should get my blood-work done.
I found a nurse who said she would take my blood. As has happened to me so many times before, she had problems getting the needle and little catheter tube into my vein and had to press and poke around, causing unnecessary pain. This is when the tears started to come, sitting in another cramped hall while a large man in a bed stared at me. At this point, I was exhausted and starting to get worried, and I needed a good cry. So I let it out, my tears spilling down my face, nose running, red cheeks. Eventually she got the thing to work, took the blood, and then left the tube in to be accessed later for my MRI injection. Because she had put the needle in incorrectly (which I didn’t know at the time), it was difficult to move my arm without pain.
I went back to where my sister was waiting, and then my husband came to join us. It was a real party up in there.
After some more waiting, a neurology resident came to check me out, doing all the same tests Mean Nurse had done earlier. He wasn’t really able to provide me with any new information or any indication of what they were looking for, but at least he was the first person who wasn’t a complete a-hole. He said the brain MRI was definitely the right test to order (good thing we had to beg for it), and he’d discuss with his staff physician and get back to us.
The resident returned and told me that they’d like to admit me for the night, because there were no MRI spots available at that time, so I’d have to go first thing in the morning.
“But Mean Nurse told me she had booked me for an MRI and it would happen in a few hours,” I said.
“I’m not sure what happened there, but I called them and you are not on the list. I guess there was some miscommunication. The first slot for emergency cases is tomorrow at 5AM.”
I asked if I could go home and sleep and come back in the morning, but he told me that that’s not how it works and if I stay as an inpatient, the process will move much faster.
“Can I just go home, but pretend I’m here the whole time, and race back in the morning?”
He did not seem to appreciate that suggestion.
The resident apologized for the mixup and that I was stuck there and told us to go over to admitting.
We wandered over to the admitting desk.
“The admitting secretary is on break,” said a woman at the desk.
“Do you know when she’ll be back?” we asked.
“Can anyone else admit me so I can be in the queue to get a room?”
“No, only she can.”
We waited some more. She did not return. We decided to make a quick escape to McDonald’s. I had already eaten a burger and fries that day, but I figured, if I’m going to die soon anyway, I’m going to shove my face with fast food as much as I can. So we sat in McDonald’s, with a blood-filled tube hanging from my arm, eating some nuggets and fries.
When we returned to the hospital, the admitting woman was back at her post. We gave her our info for insurance, and she told us we should have a room in an hour or two.
We went around the corner to some old reclining chairs where people get blood drawn and perched there for awhile. The hours continued to pass. We went back to the admitting desk to ask if she could check how long until I could get a bed. She said she wasn’t able to tell us that information, as if we were asking for top-secret super spy information. My sister headed up to the neuro floor to see if there was anyone there who could help us out, to no avail.
I walked around to suss out the situation and saw a man being questioned by the police, his entire face and body covered in blood.
A new nurse appeared for the night shift. We asked him to check in on the room situation, and he was happy to help and made a call. He was the first person who actually smiled and seemed capable of compassion and eager to assist us. He was my angel, in the middle of hell.
Nice Nurse told us that I was not getting a room that night. At this point, it was around midnight. Whether the admitting lady had lied to us, or was just clueless, I am not sure. But we were never getting a room. It was all a big lie.
I asked him if there was any way I’d get the MRI that night, and he said not likely, as they only keep two slots for emergency MRIs at night and they had to keep them open.
“Does a young girl with cancer who might possibly have a brain tumour not count as high on the priority list?” I asked, mostly rhetorically.
He smiled. “Fair enough,” he said.
Nice Nurse said he would find a bed in the ER for us so I could at least lie down and try to get a few hours of sleep. We returned to our chairs, eating McFlurry sundaes, while the patient behind the curtain in front of us discussed her leaking stomach, and another patient on the other side of the curtain fainted in the bathroom, causing a massive commotion with several people yelling.
Finally Nice Nurse returned with the best news I’d heard all day: he had a bed for us down the hall. It was just a skinny ER bed, with a half-broken recliner beside it for my sister, but it was a huge step up and felt like we’d just been given a free night’s stay at the Four Seasons. A place to rest my head and catch some Zzzz’s. Glorious!
My husband left for the night to get some rest, and we tucked ourselves in.
Unfortunately, on the other side of our curtain, was a very loud family that decided to chit chat and talk loudly on their cell phone all night. I tossed and turned for the next several hours, in and out of a sort of half-sleeping state, waiting for 5AM to roll around.
I looked at my watch and noticed it was 6AM. I stumbled out into the hall and over to the nursing station to find Nice Nurse.
“What happened to my 5:00 MRI?”
“An emergency came in, so you’ll now be closer to 10:00.”
I went back to my spot and told my sister, and we cursed at our noisy neighbours who were still being noisy.
“I really don’t want to die yet,” I said to my sister. “I’ll be super pissed if there’s a tumour in my brain. I am so sick of this crap. I know I shouldn’t complain, though, because other people have really hard lives.”
“Your life is hard too,” my sister reminded me.
“I think my funeral would be really packed,” I continued. “It’s so sad to think that I wouldn’t be there, because I really want to see who shows up. If I find out I’m dying, I think I’ll start making a guest list for the funeral.”
Breakfast came, which included corn flakes and bluberry Greek yogurt. I think that’s pretty much the holy grail of hospital breakfasts, so I was quite happy.
Finally a new nurse came by and told me I’d be going up for my MRI shortly and to get in my gown and get ready. WOOHOO! I never thought I’d be so happy to get wheeled into an MRI.
Before heading up, the nurse flushed the IV, and it stung like hell. I told her the same thing had happened the night before when it was flushed, but that nurse hadn’t seemed to care.
“That shouldn’t happen,” said New Nurse. “If it’s burning, that means it wasn’t put in right. I’m going to have to redo it.”
This meant that I had that thing dangling from my arm for approximately 20 hours for absolutely no reason.
She took out the old one, and put in a new one, on the first try. She flushed it again, and whaddya know, no burning. This made New Nurse quickly transform into Best Nurse.
A porter came and wheeled me up to the MRI, even though I could walk perfectly, but apparently they don’t let you walk. So I decided to pretend I was royalty and lay back and enjoy the ride.
The MRI was uneventful, same as the ones I’ve had before. Confined space, loud sounds and vibrations, the usual.
After returning to my “bedroom”, a senior resident from Neurology came to speak to me.
After going through a bit of my history and what had transpired in the past 24 hours, he asked me if anyone had explained yet why they were doing the tests they were doing and what they were looking for. I told him no one had really talked to me at all this entire time.
He told me about Horner’s Syndrome–the first person to mention this since I’d googled it the day before–and the possibility of there being some sort of nerve damage causing it. He said I’d done the right thing going to the ER and it was worth looking into, considering my breast cancer history. I told him I’d been told earlier it could take the entire day to get the results, and he said there was no way it should take that long, and he’d push to get the report and would check in an hour. I told him I’d been teased many times before, with promises like his, and he assured us he would return and wouldn’t up and disappear without telling me what was going on inside my brain.
My husband returned and we ate some Tim Horton’s (sidenote: have you tried the new salted caramel timbits? Hella good). More time passed, and our frustration continued to grow as we felt like trapped prisoners with no clue as to when we’d ever be released.
The deadline of when Senior Resident said he’d get back to us had come and gone. We asked a nurse to page neurology and she said she would. More time passed, and nothing, and no one. I walked back down the hall towards the nursing station, a zombie with dark circles under my eyes, shoelaces dragging on the floor, greasy hair hanging over my eyes. I found the nurse.
“Did you page neurology?” I asked.
“Oh, no, sorry, I’ve been really busy but I’ll get to it in a bit,” she said.
A handsome doctor was sitting at the desk, on the computer, and asked if he could help me with something. I explained the situation.
“I know your case,” he said, “I was reading about you this morning. I think your report is available, let me see if I can call it up. That must be really stressful, having to wait for news like that.”
This was the first medical professional who actually acknowledged how I might be feeling throughout this whole ordeal. He quickly became my hero.
He looked at his screen and saw that, indeed, my report was there. He printed it off and went over it with me. No mass found, no metastatic disease or abnormality. Nada.
“Oh, that’s good to know!” I exclaimed, but he had to take a phone call. I motioned a thumbs-up to him, and he smiled. I went back to my spot, carrying the report in my hand.
“So I don’t have a brain tumour,” I told my sister and husband. Happiness all around. My sister let out a huge sigh of relief, revealing she had overheard a conversation earlier where one of the emergency doctors expressed concern that there may be a mass in my brain.
The Senior Resident returned with discharge papers and I told him I’d already accessed the report through Handsome Doctor. He told me they don’t know what caused my symptoms but they’ll be referring me to a neurologist to see at a later point. We all agreed we were glad there was no tumour pushing on my brain, and I thanked Senior Resident for his help.
My husband quickly ushered me out, worried that someone would come back with another reason to hold us hostage for the next several days.
We left the hospital and went outside, blinded by the light of the sun. My sister went home on her bike, and my husband and I walked home. I immediately jumped in the shower, not having changed in two days and feeling incredibly grimy. I scrubbed hard to remove the hospital smell and the remnants of the past 24 hours.
I lay on the couch, feeling grateful that the entire experience had been nothing more than a very strange and unpleasant day. It is hard to come to terms with the fact that any new medical issue will always be seen in the context of having had cancer, at least for the foreseeable future. I will always have to live with that possibility that the cancer has spread, and a new tumour has found a home in a place I’d rather it not live. I don’t know what caused the eye issues, and I don’t know how long it will be until the next thing pops up that throws everyone into a panic. Hopefully I can get a nice long break after this one.
For now, I feel lucky. I can look back at the whole experience and laugh, and remember it as “The Day I Ate A McFlurry In The ER While A Woman Fainted Beside Me” rather than “The Day I Found Out I Had A Brain Tumour.”
Sorry it’s been awhile. I’ve been pretty busy and am usually too exhausted by the end of the day to update you on the various goings-on in my life. And when I’m not working, or writing, or doing various extracurriculars, I am spending time binge-watching old Friends episodes, along with everyone else in North America. Turns out the whole Ross-and-Rachel saga is just as enthralling as it was twenty years ago.
I’m not sure if I’ve told you this already, but I’ve been taking improv comedy classes at Second City since last summer. At first, it was just a writing assignment, to challenge myself to try it out, even though I’d had no prior interest. I’m now almost finished the third level, and signed up for the fourth. I look forward to it every week. I get to laugh and make other people laugh, which are two of my very favourite things. I’m not sure how serious I’ll get with it, but for now, I’m having a gay ol’ time.
Oh! I also should mention, I will be sailing the high seas in a month. My family and I are headed for the Caribbean to escape this brutal winter and spend some QT together. When I was sick, we had talked about taking a trip to somewhere warm once I finished treatment. So I reached into my wallet, pulled out my cancer card, and reminded my family of the idea, and–voilà! Off we go. I’ve been hitting life pretty hard these days, and though I can’t complain, I’m looking forward to a bit of a break from it all. I am always happiest when I’m looking out at the ocean.
Speaking of cancer cards, it’s getting harder and harder to use mine. People start to forget after awhile. And that’s okay, I don’t blame them. After all, my hair is getting closer to shoulder-length. I even had someone recently compliment my eyebrows, which was nice to hear, considering the nicely groomed, dark arches you see are just the product of my handiwork with some eyebrow gel. I’ve pretty much given up on the idea that my real eyebrows, in all their former glory, will ever come back. A small price to pay for still being alive, sure, but kind of a bummer. My days of running out the door without worrying about makeup are long gone. I remember I never really liked my eyebrows before. They were kind of unruly and I didn’t know what to do with them. It’s funny thinking about that now.
Don’t it always seem to go, That you don’t know what you’ve got ‘Til it’s gone
I recently had to go over my medical history at an appointment with a new dentist. She asked about surgeries and medications, which obviously led to having to reveal I am part of the young and the breastless club. I wish everyone in the world could just get the memo that I had cancer, because I am so over the sad/shocked/concerned reaction people have when I tell them. The dentist did the typical “Wow, at your age?!” followed up by the requisite “Is it a hereditary cancer? No? Wow!”
When I see the pity look in people’s eyes, it makes me feel pity for myself, and then I start to feel really sad. Which is no good, because I don’t want to feel that way. I can remember one time having to explain my cancer history to some sort of professional – I can’t remember who or why – and he just acted normally, continued the conversation, without his mouth dropping to the floor, and without making me feel like some sort of circus freak. That was great. More of that would be nice. But unfortunately, most people are still quite misinformed about the fact that young adults can and do get cancer, so the typical reaction is one like this:
In other cancer-related business, I recently requested to switch my brand of tamoxifen, because my hot flashes were keeping me up all night, which made me feel like this:
I had switched before, accidentally, when there had been a shortage at all pharmacies of my usual brand. I noticed that my symptoms seemed to be better. When my original brand was back in stock, I went back on it for my next refill… and whaddya know, the hot flashes came back with a vengeance. Apparently certain brands can cause different symptoms.
Why did no one suggest I try another one in the past 1.5 years I’ve been suffering?
Your guess is as good as mine. Just another reminder that I gotta keep looking out for numero uno, because no one else is doing it for me. I called the pharmacy and requested to switch. So far, the flashes are better, although the general insomnia might be slightly worse. But if I’m going to be lying awake at night, I’d rather do it without feeling like my body is engulfed in flames. These are the options I have. Most cancer treatments just kind of suck. No one said it would be a party. Although wouldn’t that be great if it were?
Anyway, that’s about all I’ve got right now, as I’m starting to feel my eyes get heavy. Did you know that cancer ages you about one million years? They don’t advertise that when they tell you you have cancer, but you figure it out a bit later. It’s okay though, because it also means I have an excuse to take naps for the rest of my life, which if you ask me, is pretty sweet.
It seems many people are reflecting on 2014 and, generally, letting everyone know how fantastic their year was. These kinds of posts can irk me somewhat; as much as I’m happy for all the great stuff happening to many friends and family, I’m also aware that a lot of people might not have had such a great year and it might be difficult to read about so many personal experiences oozing with happiness and celebration. I, myself, was one of those unhappy souls not so long ago, with 2012 and 2013 both being fairly rough on me. The last thing I wanted to hear was how awesome everyone’s year had been when mine was anything but.
But now as I reflect, I must tell you – 2014 was a really good year for me. And I want to share that fact with all of you who might have had a shitty year and are going through a rough time, be it with cancer or anything else. Even when life is at its darkest, the light eventually finds its way back in. There was a lot of light in my 2014. So here is my year in review, and may it give you hope that next year can always be better than the last.
Ah, who can forget this glorious moment: finishing cancer treatment. I can’t even believe this was less than a year ago. It feels like a lifetime away now, like a memory that isn’t even mine. Finishing treatment was a wonderful way to kick off a new year and a fresh start.
I also went to Jamaica, again, because apparently one cancer vacation was not enough.
My college roommate got married and we took a trip to Los Angeles.
I walked the runway in the Holt Renfrew/Wellspring fashion show and did not trip and fall. So much fun.
Got my port removed without any drugs. HARDCORE CANCER GIRL.
Much to my pleasure, the hair continued to grow.
My husband became obsessed with running, which makes him very happy. Although this is really part of his year and not mine, my happiness is directly related to his so happy husband = happy me. (If you need to excuse yourself to go barf after that sentence, I understand.)
Went to Washington D.C. for a family trip and cousin’s bar mitzvah. My first bar mitzvah in many years. If anyone wants to invite me to their bar mitzvah, I’d totally come. They’re way better than weddings.
My beautiful mama turned 60 years old! 60!
The beginning of the summer of too much ice cream began.
I faced my fear of heights and leaned off the edge of the CN Tower.
Went to summer camp with my sister.
Had my first column published in a national magazine.
Went to NYC for an early birthday celebration where I pretty much ate for 4 days straight.
My 30th birthday, which included a lovely surprise party picnic in the park with my friends and family.
Walked 60KM to help fund breast cancer research. Wasn’t waiting for a cancer diagnosis, or preparing a speech about my cancer diagnosis this time around – just a plain ol’ walker like everyone else.
Got dressed up for a big charity event for Rethink Breast Cancer, and then got a job working there a couple weeks later. Not a bad deal!
We celebrated our third wedding anniversary by going to Mexico and relaxing for a week, which was pretty much the opposite of our first wedding anniversary post-mastectomy. Mexico FTW.
My husband’s brother and his wife had a baby and we met her for the first time and fell in love.
Holiday time with lots of friends and family and food. Doesn’t get much better.
As those super weird Facebook 2014 recaps would say: It’s been a great year. Thanks for being a part of it.
If you’ve been following my recent blog posts, you may have noticed that I’ve been having some worrisome aches and pains for quite awhile. My oncologist finally ordered me a bone scan last Friday, and if you follow my Twitter or Instagram you will already be aware of the results…
I DON’T GOTS NO CANCER IN MY BONES! Yiiiiiipppeeeeeeeee (sorry, I am not feeling very eloquent today, I’m tired).
My mind once again went to some very dark places while waiting to learn my fate. Unless you’ve ever had cancer, and had to undergo multiple tests to find out if your cancer has become terminal, you will never understand what it feels like to be in that unfathomable situation. And I hope you never have to understand. I’ve had major sob-fests merely over the realization that I will carry that anxiety with me, in some form, for the rest of my life. This cancer crap sure ain’t easy.
So now I breathe a sigh of relief, let the heavy weight release itself from my chest, and get on with life until the next thing crops up and I have to wonder: Is it cancer?
And since I believe all good cancer-related news must be celebrated in some form, I did just that: by ordering sushi with my sister, watching terrible reality TV, and taking a series of ugly photobooth photos that made me laugh so hard my ribs hurt.
But at least I know the rib pain was laughing-related and not cancer-related. I do know that. At least for today.
Hello loyal readers! (Or, people who Google searched “cupcake recipe” and accidentally ended up here.)
I haven’t been updating the blog too frequently, but this is not because I have nothing going on, but rather the opposite. I often sit down to write and then quickly get side-tracked doing something else and lose my focus. I could blame it on lingering chemo brain, which I do believe I occasionally suffer from, but it mostly comes down to just being busy. Which is a good thing. Here are the things that have been occupying my time and my mindspace (which apparently isn’t a real word, but it should be).
TELEVISION! I realize watching TV might not be seen as the most fruitful of activities, but there is so much good stuff on right now that I am giddy about. I can talk about TV for hours, so if anyone ever wants to do that with me, feel free. My newest obsession is How To Get Away With Murder which is the most entertaining thing I’ve seen on television in awhile. I also recently watched both seasons of Rectify, which is on Netflix, and deserves way more attention than it’s been getting for its unbelievable performances and gorgeous cinematography. And of course there are all my old standbys: Mindy Project, Parenthood, Scandal, etc. And there is still so much I want to check out (The Affair, The Leftovers, Transparent) but haven’t had time to yet. I LOVE TV SO MUCH AND I CAN’T STOP.
ELLE! If you’ve been following along, you know that I’ve started writing my monthly column for Elle Canada magazine called #LIFEREBOOT about discovering life after cancer. So I’ve been busy exploring and writing and doing many fun things, like going on mindfulness retreats and leaning off very tall towers. Every month that I see the new issue in my mailbox, I still get giddy when I turn to my page and see my name and photos and words. It’s been a fun challenge, and I am learning a lot. For February’s issue, I’ll be writing about something that’s been keeping me busy for the past couple months and that I’ve enjoyed immensely but I don’t want to spoil it, so you’ll have to wait and buy the magazine.
ANXIETY! This is nothing new but is simply now a common theme in my life that likely will never completely go away, and that I must learn to live with. I don’t mention this stuff for pity, or for advice, but merely to help non-cancer people understand that us cancer-people live a very complicated existence, often filled with various bouts of fear and anxiety. Sometimes I think I’m in the clear and over “that phase” and then all of a sudden, something new pops up — a new pain, a new ache, a new symptom — and I question my health and my future. I worry about not being alive in 5 years, I worry about my body betraying me in an awful and grotesque way, I think about what my funeral might be like, and who might show up. Again, this is NOT a cry for help. For 90% of my days, I’m living and loving my life and having a ball. But the other 10% is still kind of crappy and that’s just the hand I’ve been dealt, as have many others. And we’ll get through it, because that’s all we can do.
MEXICO! A perfect cure for all life’s problems… vacation! We just got back from celebrating our third wedding anniversary in Mexico on the most beautiful beach, where we ate fabulous food, swam in the ocean and read books by the pool. It was divine. I’ve said this before, but since having cancer I am incredibly grateful for any chance I get to just relax and be spoiled. Life is short, and I want to spend as much of it as I can sitting by the ocean and feeling the sun on my face. There is nothing better, in my opinion. Here are some photos if you like that kind of thing.
NEW JOB! Some of you may have heard of an awesome charity called Rethink Breast Cancer and if you haven’t, well now you’re gonna. They support a cause very near and dear to my heart: helping young women with breast cancer and those affected by breast cancer. They provide cutting edge resources, such as their new digital content, including a video by yours truly.
For this video, I came up with my own idea/script/tips. Nothing was spoon-fed to me. This is because the people at Rethink are cool and smart and believe in allowing young women with breast cancer to share their unique voices. My involvement with Rethink will now be turning into my day job, as I begin a new contract position with them entailing the coordination of various online initiatives. My advocacy and concern for issues affecting young adults with cancer has become a huge part of my life, and I’m excited to work somewhere that will foster that passion.
So, there you have it. Lots going on. Lots of changes. Lots of new beginnings. Lots of good stuff. Lots of hoping and crossing fingers for more good stuff. Let the good times roll.
A couple days ago, my dad and I met with a geneticist to discuss our genes and cancer and fun things like that. I know very little about genetics and DNA (and biology, for that matter), so I find it really fascinating to learn about how complex human systems are, and how much new information is being discovered every day.
Experts say that most incidents of breast cancer are not hereditary, and are due to various risk factors (such as radiation exposure, obesity, alcohol intake, etc.). But a portion of breast cancer cases are due to a genetic predisposition. You may have heard of the well-known BRCA1 and BRCA2 genes (as made popular by Ms. Angelina Jolie), which greatly increase the risk of having breast and ovarian cancers. But from meeting with the geneticist, I have learned that there are in fact a whack of other genes that may predispose you to a whole array of cancers.
Hereditary cancers are often suspected if a person was diagnosed at a young age (check), diagnosed with a rare form of cancer for their population (28 year old with breast cancer – check; adult male with breast cancer – check), and if related cancers are present in multiple generations (check). So as you see, there is good reason to wonder if my and/or my father’s cancer was the result of a faulty gene. It could just be completely random, and a huge coincidence, but deep down, I really don’t believe that. I have met so many people who have a very high incidence of cancer within their families, despite being healthy and doing everything “right” to avoid getting cancer. It’s obviously a lot more complicated than we realize.
The geneticist asked us if we would like to undergo testing of 21 genes that have been identified to increase cancer risk. Some of them increase your risk of certain cancers by a great deal, and others more moderately. The types of cancers associated with these genes include breast, ovarian, colon, and a bunch more. When providing me with an example, the geneticist mentioned the gene that increases risk of stomach cancer, and if positive, the possibility of removing the stomach. Um, HOLD IT RIGHT THERE, DOC. There’s obviously no way in hell I would give up my stomach, since doing that would greatly put a damper on my favourite activity: EATING. So let’s hope that bleak illustration does not ever become a reality. I’ll take a pass on that one, thank you.
Genetic testing can be very tricky psychologically, and it’s not for everyone. Some people don’t want to know what terrible things might be lurking around the corner. It can be very unnerving to have that information. But on the flip-side, it can also be reassuring — to know that you didn’t do anything to “cause” your cancer, and to know that there are steps you can take to lower your chances of cancer in the future.
I believe that knowledge is power, and as you might have figured out by now, I am an information-seeker and am constantly looking for answers to all of life’s questions. So for me, it was a no-brainer to partake in the genetic testing, and my dad felt the same as well. We signed some forms and gave some blood and put them in a fancy box, and now we wait (likely for several months) to hear the results. Since this testing currently is not available in Canada, the government needs to be petitioned to cover the cost of the test at a lab in the States. The doctors are handing all of that, but if it does not get approved, I’ll obviously step in and make a scene and make sure it goes through. You don’t want to mess with a feisty cancer blogger, I’ll tell ya that much.
Many of these genes were only recently discovered and not that many people have undergone testing. So we’re kind of like pioneers. Or something.
Obviously it is terrifying to think of any of these genes coming back positive, and what that might mean for me and for my family. But I also can’t help but be curious about what is going on in my own body. I will always be seeking out more answers, wanting to know the good and the bad, and everything in between.
But for right now, all I can do is wait, and hope. And in the meantime, I’m going to enjoy having my health, my life… and my stomach.