Updates from the womb

Well folks, we have officially entered the third trimester and I have clearly failed at mommy blogging considering I haven’t blogged at all. Oops. I thought it was time for an update, as I seem to be getting a lot of questions from a lot of interested parties.

After announcing I was pregnant, I was blown away by all the comments and messages from people I don’t even know, those of you who have been following me for years and seem almost to have been waiting for something exciting to happen. I forget sometimes that so many people feel connected to me through my writing, and feel like they know me in a very personal way. It’s bizarre, but also pretty great. Is this how it feels to be Beyonce? I imagine it must be. It’s quite lovely, to feel so much love coming towards this unborn little being. I know that he can feel it, because I can feel it, and we seem to be pretty connected these days due to the wonders of biology and what have you.

For those who are interested in the beginning of the baby journey, I wrote a piece for ELLE Canada last month which you can read here. I think that fills in a lot of the blanks. That also reminds me that I took a photo the night I stopped taking my cancer pills. Let me go look for that…

Oh, here it is!

20150905_220524

That was back in September. Sayonara pills, and hello prenatal vitamins! And here is another pic that I took several months later, after winter had come and gone.

20160312_115523

I took multiple tests and as each one turned up positive, I still didn’t believe it. I continued to keep testing every day, like a crazy person, and watched as the test lines began to darken.

20160315_181416

It took me a long time to really believe I was pregnant. It just seemed too good to be true. It still kind of does, but I’ve come to accept that it’s really happening. Or else I’ve just gotten very fat and am possessed by some sort of alien making waves in my stomach, which I suppose is slightly possible, but not too likely. Nope, this baby definitely is coming and I have the hip pain and indigestion to prove it.

So to answer some questions for those who like answers…

I am currently 28 weeks preggers, or in my 29th week. In some ways, it feels like it has gone fast, and in others, I can barely remember what it was like not to have this little guy in my belly. The due date is November 20th. Whether he presents himself early or late is TBD. Sometimes I feel as though he is already trying to escape and then I tell him firmly, YOU MUST STAY IN THERE LITTLE BABY WE ARE NOT READY FOR YOU and he seems to be a decent listener. So November 20 is the target. Feel free to buy him all his presents before then. (Just kidding, all we want is love and good wishes.) (PSYCH, as if, obviously I want presents, do you not know me at all by now?)

Speaking of gifts, you may or may not be aware that Jewish women typically do not have baby showers, although this trend seems to be shifting a bit. But traditionally, it’s not done because of fear of drawing the attention of the evil eye and bad spirits when you celebrate something that isn’t here yet. This is a bummer because I am a big supporter of celebrating this baby, but these age-old superstitions get stuck in your head and ruin a lot of the fun. I’ve felt on-edge most of the entire pregnancy, and having to add Jewish neuroses into the mix doesn’t make it any easier. When my non-Jewish friends talk about how they received everything for their babies at their showers, I feel a bit left out. But I don’t want to upset the Bubbies, so no shower for me… womp womp. It’s okay, there are lots of other great things about being Jewish, like bagels and lox.

Because of these superstitions, some Jewish couples also hold off on buying anything for the baby until he/she is born. No crib, no stroller, no clothes. NOTHING. For someone who needs to plan and prepare, the amount of anxiety around waiting for the birth to purchase a single thing is just too much for me. No thank you. I’ve been holding out as long as possible, but now that we’re starting to countdown the weeks until baby’s arrival, I JUST WANT ALL OF THE THINGS RIGHT NOW. People say, “Babies don’t need anything, just your love, don’t worry!” Ummm yah right. Babies need things. I need things. We both need things and are very excited to get things. I will not let superstition deprive us of the joy of material goods. We’ve already received some gifts and I’ve bought a few sleepers and books and just having these things makes me SO happy. So all that to say, I will compromise with no shower, but still setting up baby’s room before his expected date of arrival. And I feel okay about that conclusion. I assume that the evil spirits are bored with me at this point anyway.

20160709_171624
Need to find a matching Winnie the Pooh onesie for myself STAT.

To be honest, the financial costs that come with having a baby have been a big source of stress lately. I keep adding up all the immediate things we need to get and the ongoing things we will need to buy, and future dreams of buying a proper house in a city where it’s impossible to do so, and astronomical daycare fees, car payments, etc. etc., and then I end up wondering why anyone chooses to have children in the first place. It’s kind of a crazy thing to do.

But then the little guy kicks me and I can feel his tiny feet under my hand and I watch him as he wiggles around in there and I think, I would literally give up buying anything for myself ever again and give up anything else in life I ever thought I wanted just to be able to hold this little miracle in my arms and it’s all so worth it because he makes me happier than anything else in the world, and he’s not even here yet. So okay, baby, you win. I will buy you things. Just try not to give me too much ‘tude when you’re a teenager and we’ll call it even.

In terms of how I am feeling physically, which is another popular topic of discussion, I’m feeling pretty great. I’ve had some wicked bad leg cramps, which have left me screaming and crying on more than one occasion and sleeping is no longer enjoyable for me. But otherwise, can’t complain. My belly is getting quite large, and admittedly, I love it. Maybe I won’t so much in a few months when I’m trying to lose it. But for now, I’m lovin’ livin’ large. My entire life I’ve felt like I had to suck my stomach in after having a big meal, and now I get to just push it out and no one knows if it’s baby or bloat and, let me tell you, IT IS AWESOME. What a perk.

IMG_20160809_223549.jpg
Ice cream? Baby? Who knows!

I know the next couple months will bring increasing discomfort and I know the actual birthing of the child thing won’t be a walk in the park. But I feel strangely at ease about it all (for now, at least), albeit totally unprepared. I feel like my body has been through so much trauma that it wasn’t meant to endure, and somehow made it through. This time, it’s going through something it was made for, and that just feels a whole lot better. And at the end of it, I will get the greatest prize of all, which seems well worth any temporary pain and agony.

Oh my little baby, you have no idea how excited we are to meet you.

Untitled1

Advertisements

Life finds a way

When thinking of what to title this blog post, a post I’ve been imagining writing for a long time, the voice of Jeff Goldblum immediately popped in my head. In Jurassic Park, one of my childhood faves, his character utters the now famous line, “Life, uh, finds a way.” Although referring to dinosaurs and their ability to breed in that particular case, the line came to mind when thinking about my own little (far less destructive) miracle that has found its way into existence, despite the odds.

That’s right folks, the rumours are indeed true: I am pregnant. With a baby (not a dinosaur, in case there’s any confusion there). And not just a baby, but a baby boy. A real, live baby boy. Ain’t that somethin’?

For a quick recap: you may recall that I was taking cancer-fighting drugs that prevented me from having a child. You may also recall that I had a type of chemotherapy that put me at risk for damaging my ovarian reserve. You may not recall any of this, because it’s in your rearview mirror and you are likely thinking about other things, as you should be. But I have not thought about other things. Ok, that’s not entirely true. Occasionally I think about pizza, or last night’s Bachelor episode. But a lot of my brain power has gone to thinking about babies. Wondering if that possibility was lost for me. Wondering if I should take the risk. Researching, reading, discussing, deciding, trying to sort through it all the best that I could.

My decision to attempt pregnancy was not made lightly. It was agonizing. At times, it still is. My anxiety has been sky-high, as I wrestle with nerves around the pregnancy itself after encountering a bumpy start which made me hesitant to share my news. My excitement has been tempered with familiar fears creeping their way back in, fears about my own health and how my survival now feels even more critical. I feel like the last time I got really excited about life, I was hit with a bomb, and I worry (irrationally, but still) that I might somehow jinx this good fortune if I put it out into the world.

But after waiting patiently on the sidelines for the last several years, watching baby announcements flood my social media feeds, celebrating the births of my friends’ and family’s children, I want to enjoy this moment in time, this moment I’ve waited so long for. I want to share it. I want you to know that miracles can happen. I want you to know that good things can happen. But mostly I want myself to know that good things can happen. It is possible. It has to be. It’s happening right now, as I feel my son swimming around inside of me.

Good things can happen.

 

My hope for future young women with breast cancer

 

I always took it for granted that I would, someday, have children.

I never grappled with the decision of whether or not motherhood was for me, or thought of what my life might be like without kids. I made mental notes of my favourite baby names, and imagined what they might look like. After meeting and marrying my husband, the desire to start a family grew stronger. Maybe she’ll have his eyes and my mouth, I thought. I hope he gets my husband’s athletic ability, and not mine. I dreamed and planned and let my mind wander to a future that I thought was secure.

I made an appointment with my doctor, thinking maybe we’d broach the subject of stopping my birth control pill. I felt nervous and giddy at the thought. How did I get here? Was I really ready for this? What if there was a problem?

And then, there was a problem.

A week before my doctor’s appointment, I found a lump in my breast.

I changed the purpose of the appointment to talk about boobs instead of babies. And after several tests and a couple weeks of waiting, I received the diagnosis. Breast cancer. I had just celebrated my 28th birthday and had been married for less than a year. And, ironically, I did end up coming off my pill, but not for the reason I had intended; rather, the breast cancer I had was fueled by estrogen (a main ingredient of the birth control pill), so I was told to immediately stop taking it. No more pill. But no baby either. To say things were not going according to plan would be a massive understatement.

In the same conversation where I learned I had an invasive, aggressive breast cancer, I also learned that the chemotherapy I’d need to undergo could cause fertility issues. Major double whammy.

At first anything other than the fact that I might die seemed inconsequential. But after taking some time to process everything and meeting with a fertility specialist, the reality set in that there was now a possibility I’d never have children. I was devastated.

I considered undergoing fertility preservation treatment and went through the initial steps, but ultimately pulled out at the eleventh hour due to timing factors, enrolling myself in a clinical trial, and not being comfortable at that point with injecting hormones into my body. We decided to accept the risks, and hope for the best.

Now I am two and a half years past my diagnosis, and my baby-making clock is ticking once again. Time to get a move on, right?

Not so fast.

Because my cancer was hormone-sensitive, I need to take a drug called Tamoxifen that is proven to reduce the risk of the cancer returning and possibly spreading to another part of my body. The newest recommendation is to stay on this drug for 10 years. Great news, right? A drug that could actually help keep me alive. I am lucky to have that option.

Unfortunately, hormonal therapy for cancer comes with a whack of side effects. The biggest one for me is that I’ve been told not to get pregnant while taking it, due to its potential to cause birth defects.

I am 30 years old now and have been taking Tamoxifen for almost two years. If I stay the course of 5-10 years, and take into account my chemo-aged ovaries… well, you can do the math.

So now I find myself again in a sticky situation, forced to make another difficult decision on top of the ones I’ve already had to face. (Fertility presevation? Double or single mastectomy? Radiation? Reconstruction? Cancer has a way of forcing you to be decisive.)

The way I usually make my decisions is to do read up on all the research and literature I can possibly find. But in this case, there are no studies assessing the risk of pausing hormonal therapy to get pregnant. Zilch! As Dr. Susan Love writes, “We are frequently asked what would happen if a woman stopped taking tamoxifen between two years and five years, and the truth is that we just don’t know because we have no studies that have looked at that question. …Because there is no data to support stopping early, this has to be a personal decision, and it is undoubtedly not an easy decision for many women to make.”

I constantly toss scenarios around in my head, playing out the various possibilities. What if I continue treatment, and by the time I’m done, I’ve missed my window to get pregnant? What if I stop taking my pill, get pregnant, and I end up dying and not being able to raise the kid I just had? What if I take a break, get pregnant, go back on Tamoxifen and we all live happily ever after? (Obviously this third scenario is the one I cross my fingers for.)

In my case, these are the cards I’ve been dealt, and I won’t be able to get the answers I need by the time I need them. But the really good news is that young women with breast cancer in the future will have the data they need to make an informed decision.

The POSITIVE ‘Baby Time’ trial will investigate if interrupting hormonal (endocrine) therapy to get pregnant increases the risk of breast cancer recurrence. This is the exact study that, had it been done ten years ago, I might not find myself in the situation I’m in right now.

I’m so excited and proud that Rethink Breast Cancer is committing to funding the Canadian arm of this international trial. They need to raise a lot of money to make this happen, so please give generously! Your contribution will make a huge difference to so many young women who one day may be walking the same path I’m on. And let me tell you, anything that can make that journey even a little bit easier, is worth doing.

And as for me, I’m not sure where my choices might lead me, or how this story will end. But I have hope. Hope that I’ll have the family I wanted, hope that I’ll live to see that family grow, and hope that pregnancy will be a possibility for all those young women who follow behind me in the years to come.

There is always hope.

Another part of the story

Besides a minor mention here and there, I have never really written about fertility and cancer — specifically, my fertility and my cancer. I’ve had numerous reasons why I didn’t want to write about it: feeling that it was too personal and private, something only to be discussed by me and my husband, or worrying about friends who are moms or soon-to-be-moms feeling they can’t talk about anything baby-related in front of me. But I’ve come to realize that by not writing about it, it sometimes puts me in uncomfortable or awkward situations, which other people likely aren’t even aware of. And why should they be? I don’t talk about it, so their ignorance is really my own doing. I also know that a lot of people read my blog as a way to educate themselves about how it feels to have cancer, especially as a young person, and by not broaching the very important issue of cancer and fertility, I’m not doing a really great job as cancer teacher.

So, here we are. And I am ready to talk about it. Or at least, some of it.

When I was first diagnosed with breast cancer at the age of 28, one of the first things my doctor told me was that she wanted me to see a fertility specialist immediately, since certain cancer treatments can have a negative effect on one’s fertility. This is one of the very major issues facing young adult cancer patients, and unfortunately, it is often overlooked. I have heard countless stories of young men and women who were thrust into cancer treatment, without their fertility being discussed. This is a huge problem, and one I think all young people and all doctors should be aware of. So in that regard, I was very fortunate that both my family doctor and oncologist had discussions with me about how my treatment might impact the potential for me to have children.

Learning that my ability to have children might be compromised on the same day as learning that I had cancer was a major double whammy. It was a tough pill to swallow, when I was already considering the possibility that I might not even live long enough to start a family in the first place. Most people who get cancer are quite a bit older, and don’t have to deal with such things. But unfortunately for me, and for my husband, we had to deal with it, and fast.

The same week that I was meeting with breast surgeons, trying to decide if I should remove one breast or two, I was also meeting with a fertility specialist to discuss my options. To say I was a bit overwhelmed would be a wild understatement. I had tons of information coming at me from every angle, and very little time to make decisions that would greatly affect my future. It was kind of a shitty week, you might say.

The fertility specialist did various tests and exams, where my husband and I learned that, yep, we were indeed fertile. Yippee. Too bad I was about to shoot my body full of drugs that could potentially ruin all that.

There are specific chemotherapy drugs that are known to have a damaging effect on fertility. Unfortunately, I had to get one of them. This was not an option. You can’t get pregnant if you’re not alive (lesson of the day!), so staying alive was my first priority, above and beyond everything else. And sadly, in the world of cancer, the best proven method of doing this is often by poisoning yourself.

We were given the option of retrieving embryos, which we could then “store” for  the future, if needed. At first, this seemed like a good solution. An insurance policy, in case the worst case scenario became a reality. (A very, very expensive insurance policy, mind you, as these procedures aren’t covered in Ontario for cancer patients.) With barely any time to think about it, it seemed like the smart thing to do. I got a bunch of prescriptions for shots I would need to give myself and a million consent forms that needed to be signed, and we were off to the races. At least, that was the initial plan.

As I began doing more research about the hormones I would have to take, despite some limited studies showing it was safe, I started to feel uncomfortable by the idea of messing with my hormones, especially when I have a hormone-sensitive type of cancer. It felt risky, especially when knowing that a) we might not even need the embryos and b) if we did need them, there’s not even any guarantee that the procedure would work. In many cases, it doesn’t.

I was also presented with the option of joining a clinical trial, where I could potentially receive a drug that could benefit me, targeting my specific type of cancer. If I chose to do the fertility preservation, there was a good chance the start of my chemo would have to be pushed, and I might not qualify for the trial.

To top it off, the thought of injecting myself with hormones and dealing with potential side effects from that and having to undergo the egg retrieval, at the same time as being in tremendous pain from my double mastectomy with immediate reconstruction and gearing up to start chemo… well, it became less and less appealing.

One night, I was filling out the form where we had to decide what to do with the embryos if we ended up not needing them. Would we donate them to another couple? Give them to research? Have them destroyed?

Suddenly, it all just felt like too much. It felt like I was doing what I thought I should do, rather than what my gut was really telling me to do.

After expressing my concerns to my husband, he admitted to having the same concerns too. We discussed it some more, and then came to our final decision that we were going to put the brakes on the preservation process, and have faith that things would work out for us. Dealing with the cancer felt like more than enough for us to have on our plate at that time. So with that, we put 100% of our focus into making me healthy. I joined the trial, began my treatment, and tried to push thoughts of babies and pregnancy far out of my mind.

None of this has been easy. I remember being so angry that I had to make such hideous choices. I shed a lot of tears, cursing cancer for destroying my dreams. I have wanted to have children since I was a child myself. Anyone who knows me knows this fact about me. We had hoped to have a mini S or mini J pretty much… right now. But cancer decided to show up and derailed the plans and the future we had envisioned for ourselves. At least for now.

So where does that leave me now? I am not quite sure. It is not really possible to tell what effects the chemo had on my fertility, since I’m taking a drug which messes with my hormones. And, to top it all off, I am not allowed to be pregnant while taking said drug… which I am supposed to be taking for a minimum of 5 years, and possibly 10. Or, I have the (not medically-approved) option of coming off of it early, which there are NO good studies to support, and possibly increase my risk of having the cancer come back and not surviving. So my big decisions are not over. Not even close.

It is hard seeing people around me getting pregnant and having their babies turn into toddlers. It is hard seeing photos posted at every hour of the day. I’m fairly certain anyone who has wrestled with any type of fertility issues can relate on that one. We live in a very baby-centric world, especially when you are my age. It ain’t easy. (Although I make myself feel better constantly by thinking of the vacations and nights out my husband and I can take whenever we please, and our ability to sleep in on the weekends as late as we wish. We often say “If we had a kid right now, we couldn’t be doing x,y, or z.” It makes me feel better… for a moment, at least.) If anything, this whole ordeal has made me much more sensitive and empathetic toward couples who are experiencing infertility problems.

I do have a lot of hope for our future, and our family. I know, regardless of fertility issues, there are options. I like to think that all of this sad stuff will eventually lead to somewhere happy. I need that hope, and I hang on to it.